Getting involved in the Oxford Health BRC means you can help shape what research we do and how we do it. Your involvement can improve the quality of research we carry out.
There are various ways to be involved, for example working with researchers to identify important research questions, helping to develop understandable information for people taking part in research, and ensuring research methods are appropriate for research participants.
People choose to get involved in research for a whole range of reasons. Maybe you have personal experience which you would like research to take into account; you want a chance to give something back and help influence research to benefit others; or you would like the opportunity to develop new skills by learning about research. Members from our Patients and Research Group have told us that being involved in research has helped them develop a better understanding of their condition, or the condition of people they care for, has connected them to others, given them hope, and helped increase their self-esteem. Healthtalk.org researchers interviewed 38 people about their experience of involvement in research who described the following benefits: If you are a patient, carer or member of the public who works with us on the design and planning of research, or in a strategic advisory role, you are entitled to receive payment for your time. You can find out more in our Payment Policy for the Public.► What are the benefits of being involved in research?
We want to make it easier for interested people to find out about the opportunities we have to get involved in our mental health and dementia research. Complete this form to register your details, or email claire.murray@oxfordhealth.nhs.uk for more information. If you chose to join to our Patient and Public Involvement Contributor Pool, you agree to Oxford Health NHS Foundation Trust and University of Oxford Department of Psychiatry: storing your name and email address in a password protected spreadsheet; contacting you when we have a PPI involvement or training opportunity. You can choose to withdraw your involvement at any time by emailing claire.murray@oxfordhealth.nhs.uk . On receiving the request to withdraw your involvement we will delete your contact details within 28 days. Information on how Oxford Health NHS Foundation Trust manage data in general, including your data subject rights, can be found on the Trust Privacy Notice section of our website.► Register for updates on our involvement opportunities
Register (for people 16+ years) to join our Patient and Public Involvement Contributor Pool for research into mental health and dementia and we will keep you up to date with any involvement opportunities we have available, along with information about PPI training and related information.
OxDARE brings together diverse groups who are involved in dementia and ageing research across Oxford. The Friends of OxDARE enables public members to register their interest in dementia and ageing research. A regular newsletter is sent to Friends of OxDARE that included patient and public opportunities in ageing and dementia research. You can find out more and register your interest on the OxDARE website.► Friends of OxDARE – dementia and ageing research
The diverse voices and experiences of PAR members will influence Patient and Public Involvement in our research, and will help ensure it contributes to improving the quality and effectiveness of research. PAR meets four times a year. Its members have direct or indirect experience of mental ill health and/or have an interest in research; and want to work as partners to make Oxford’s mental health and dementia research as good as it can be. You can find out more about PAR in the Terms of Reference for the group or email claire.murray@oxfordhealth.nhs.uk .► Patients and Research group (PAR)
Oxford Health BRC’s Patients and Research Group brings together patient, carer and public members, with staff members from across mental health research and care, in the development and delivery of the Patient and Public Involvement and Engagement Strategy
The group meets regularly and is involved in a variety of activities and projects with the aim to promote participant involvement, improve the experience of research participants, and raise the profile of research in mental health. If you are interested in finding out more about ENGAGE email claire.murray@oxfordhealth.nhs.uk .► ENGAGE group
ENGAGE Championing Mental Health Research Participation is the Oxford cognitive health Clinical Research Facility (CRF) Patient and Public Involvement group.
Patient and carer involvement in early psychosis research The Early Psychosis Research group is based in the University of Oxford’s Department of Psychiatry. They study the causes and course of illness and the treatments for people who are experiencing or who have recently experienced a first episode of a psychotic illness. They are looking for patient and carer members with experience of psychosis to join their group and help shape their research. Payment for time and expenses will be provided. The deadline for sending expressions of interest is 5 April 2019. Find more information and how to register your interest by clicking this link.► Do you have experience of psychosis?
