Cross-cutting theme lead: Ilina Singh
Patient and Public Involvement is when patients, carers and members of the public are actively involved in research.
Research being carried out with or by members of the public rather than to, about or for them.” – INVOLVE
Involvement can include patients, carers and members of the public working together with researchers across all stages of the research cycle to:
- select research that is important and relevant to the public
- design and deliver projects
- develop understandable information sheets for people taking part in research
- carry out some aspects of the research (for example interviews)
- interpret the results of the research
- make sure the research is reported in understandable ways and that good research is heard about
► Why is PPI important?
We think involvement can help develop research that responds better to the needs and interests of patients, carers and researchers than that developed by researchers alone.
Researchers may not have first-hand experience of the illness they are researching and involvement can provide them with important insights.
No matter how complicated the research, or how brilliant the researcher, patients and the public always offer unique, invaluable insights. Their advice when designing, implementing and evaluating research invariably makes studies more effective, more credible and often more cost efficient as well.”
Professor Dame Sally Davies Chief Medical Officer
► How can Involvement improve the quality of research?
Patient and Public Involvement can improve the quality of research by making sure that:
- research and outcomes are important and relevant to the public
- research materials are easy to understand
- the research process is sensitive and acceptable to potential participants
These factors may also lead to an increased participation in research.
► As a researcher how can I incorporate PPI into my work?
The NIHR Oxford Health BRC is committed to ensuring our patients inform our research at each key step. Our vision is for PPI to be embedded within the research themes and influence the activity of the OH BRC.
Our PPI Resources for Researchers webpage outlines the resources the OH BRC provides to support your patient and public involvement activities. If you are new to PPI our Introduction for Patient and Public Involvement for Research Staff is a good place to start.
The OH BRC has a Patient and Public Involvement Manager who can support your PPI work. She can advise on the design of PPI activities, support their delivery and help you share your PPI opportunity with potential contributors.
► As a member of the public how can I get involved in research?
For members of the public interested in research, please visit our Patient and Public Involvement page.
► Our Patient and Public Involvement Strategy
The NIHR Oxford Health BRC’s aim is to provide a structure for involving patients, carers and the public in our mental health research – here in Oxford and more broadly across the UK.
We’ve been working with our Patient and Research Group to identify how we can make sure patients, carers and the public are at the centre of our research.
We’ve developed a Patient and Public Involvement and Engagement Strategy that sets out the different activities we will focus on.