Real Voices, Real Impact: Collaborating with Industry in Mental Health Research
Putting People at the Heart of Innovation
In mental health research, the voices of patients, caregivers, and communities are essential. People with lived experience of mental ill-health provide a vital perspective that ensures medicines and therapies are not only scientifically effective but also meet the needs of those who use them. By involving people with lived experience, we build more ethical, relevant, and responsive research.
Our Approach to Patient and Public Involvement
We value authentic participation, not surface-level inclusion. Through genuine partnership with people who have firsthand experience of conditions, treatments, and healthcare systems, we improve the quality and impact at every stage of research and development.
We embed lived experience across the research process:
- Early-Stage Discovery: Identifying priorities that matter to patients
- Clinical Trial Design: Enhancing protocols for real-world feasibility and acceptability
- Recruitment & Retention: Improving trial participation by addressing barriers and concerns
- Data Interpretation: Co-developing outcome measures that reflect what truly matters to patients
- Regulatory & Access Planning: Supporting patient-centered benefit-risk assessments
- Communication & Dissemination: Ensuring trial outcomes are accessible, clear, and meaningful
Why it matters for the public
- Ensure safe and secure storage and usage of health data to support understanding of how data is used
- Increase transparency within university and industry research partnerships
- Maintain a trusted research environment to hold health data (E.g. NHSE Secure Data Environment)
- Improve understanding of how and why companies’ are involved in medical research
- Confidentiality and anonymity in research data and product design
- Understanding how public money is used to support mental health research.
Why It matters for Industry
Incorporating lived experience helps tech and pharmaceutical companies:
- Develop more patient-centric medicines, interventions and devices to develop more effective treatments
- Increase trust and transparency with the public
- Enhance regulatory alignment and fulfil expectations for patient involvement
- Uncover unmet need that drives innovation and differentiation
- Improve trial efficiency and reduce costly delays
Get involved as a member of the public
We work with medical and tech companies to design and implement lived experience involvement strategies that are ethical, effective, and impactful. We welcome individuals with lived experience of mental ill-health and/or their carers, who are interested in shaping the future of medicine by contributing to research design, governance, and dissemination.

Get involved as a commercial organisations
Whether you’re planning a new clinical trial, refining an existing program, or building out your patient engagement infrastructure, we’re here to help. Email our Industry Engagement Manager Betina Nair: betina.nair@medsci.ox.ac.uk
Resources
NIHR engage the public in clinical trials
NIHR Improving the inclusion of under-represented groups in clinical research
M-RIC How can we enable and encourage more people to take part in clinical trials? « M-RIC
Biogen – Learning about Clinical Trials – A guide for individuals and their loved ones
Biogen ‘What is a clinical trial?
Biogen website (Clinical Trials)
M-RIC web: Designing a mental health digital Avatar