We have produced a short animated film to introduce patient and public involvement in mental health research.
Involvement is where members of the public are actively involved in research projects and in research organisations. It is where research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them’. Involvement might include helping researchers identify the most important questions to ask or the most important outcomes, helping design projects that make it easy to take part, helping to make sure any written materials are easy to understand, and helping to share the results of research. As a member of the public, a specialised knowledge of the research area is not needed in order to be involved in it. Neither are you required to be a medical expert. You may be asked to speak about your ‘lived experience’. This might be of a condition or illness that you have, or have had. It may be of caring for someone with a condition or illness. It might also be of your experience of using treatments or services, or your view as a public member. What is important is that as a PPI Contributor you are able to bring your own knowledge and experience to the research process, whether as a patient or from your work or personal life. Examples of patient and public involvement include:► What is patient and public involvement?
If you are a patient, carer or member of the public who works with us on the design and planning of research, or in a strategic advisory role, you are entitled to receive payment for your time. We have developed a Payment Policy in keeping with NIHR guidance and in line with other local policies. You can download the Payment Policy for the Public.► Payment for your time
In partnership with the Oxford BRC and Applied Research Collaboration Oxford and Thames Valley, we are hosting a series of PPI webinars. You can watch a recording of the webinars on the links below:► PPI Webinars
We partner with local health and research organisations to deliver a range of PPI related training. Current training includes: Each workshop and webinar covers a research-related topic, and discusses ways in which patients and members of the public can get involved. All events are free to attend and take place in Oxford or online. Visit our events pages for details of future workshops and webinars: *Wednesday 25 November 2020, 2pm-3pm: Introduction to qualitative research * Thursday 3 December 2020, 2pm-3pm: Finding and reading a research paper Learning for Involvement: A website dedicated to learning and development for public involvement in research, hosted by INVOLVE. It brings public involvement resources and training together in one place. Public Reviewing with the National Institute for Health Research: An interactive course for PPI contributors who are providing feedback on a research document.► PPI Training
Whether you are currently involved with research, or are interested in getting involved, you might find the following of interest: If you come across any other resources that you think would be helpful to others, do please send the link to our PPI Manager, Claire.Murray@oxfordhealth.nhs.uk and we will do our best to include them. Please also let us know if you find that any of the links have stopped working.► Useful resources
Visit the ‘Work with us to shape research‘ web page for details of our current involvement opportunities.