Patient and Public Involvement, Engagement and Participation (PPIEP) is woven into the core of our theme.
We make sure that patients and the public are included, interested, and actively take part in our theme. This allows us to incorporate a wide range of insights, perspectives, and experiences from diverse communities into our research process. We do this by using methods like co-design and other participatory approaches, ensuring that our work is inclusive and representative of various voices and backgrounds.
Our PPIE framework is organised into several sub-groups which serve different purposes:
- Young and Older Person Advisory Group (‘YOPAG’): a inter-generational and cross-theme group comprising both younger and older members. The group’s purpose is to help align and integrate diverse skills, knowledge, and requirements, fostering a more cohesive and interdisciplinary approach
- Together we have co-developed the E-Co-Flourishing PPIEP Strategy and our Terms of Reference, to guide our work.
- E-Co-Flourishing YPAG: the Young Person Advisory Group (YPAG) includes junior members, ages 14–18, and senior members, ages 19–25. The senior members play a key role in fostering effective peer-to-peer exchange, providing guidance and mentoring, and promoting knowledge sharing and skill development. This group is collaborating with the Neurox YPAG and soon YPAG members from the Institute for Mental Health Youth Advisory Group, University of Birmingham.
- E-Co-Flourishing Older Person Advisory Group (‘OAPG’): members of this group are currently either present in place-specific PPIE activities like the Oxford Community Action and Blackbird Leys CDI or members of YOPAG.
- Place-Specific PPIE: the group members are linked to individual Living Lab sites and locations, such as school teachers, estate services staff, and local community members. This seamless integration of PPIE with local infrastructure ensures that community needs and perspectives are met. All place-based PPIE projects will have components that are unique to their specific contexts and others that can be scaled up or across different settings.
- Place-Independent and Theme-Specific Group: here the group members focus on particular topics or themes without being tied to a specific location. This flexibility facilitates targeted recruitment and expertise, allowing for the exploration of specialised topics, like providing feedback on a peer-reviewed paper draft related to the E-Co-Flourishing concept.
Ways of Working
Watch the animation that we co-produced with the NeurOx YPAG about our ways of working and how we aspire to achieve meaningful involvement and co-production:
We have made sure that input from patients and the public, along with collaboration, has been included in every step of our project right from the start. As we move forward beyond Oxford, we are teaming up with experts from Boingboing Social Enterprise. Our main goal is to connect with young people and individuals who are facing multisystemic disadvantage.